Attention all River Rats or Undie Runners. Pittsburgh Cupid is planning to run on 2/19/22. Based on the omnicron variant, I’m still thinking we should plan our own small event just in case the 2022 run will go virtual.
I was thinking about throwing a January Cupid’s Undie Pump at a local gym (think BodyTech, RxFit Ford City or Diamond), followed by a home party full of social distancing, vax, masks and bring your own dessert at either Les & Dave’s in A-wall or Sarah & Tom’s in College Park.
We will plan on starting the party after the gym slows down or closes at 5:30pm on Saturday, January 22, 2022. You can bench, squat, deadlift, battle rope, air bike or row your way to Undie Pump Fame.
What does it cost? A drop in fee for our partner gym- Approximately $8-$15 and a liability waiver.
What does it do for the kids? It’s another photo-op for you to push the FUN-draising to fight NF.
- Sign up to be on #rileysriverrats for the 2022 Undie Run
- Raise Funds to Fight NF.
- Plan to use this event as a training event for the real run.
- Run on Run day at McFadden’s
Sign up for the real Cupids Undie Run and Fundraising using my link.
Don’t be afraid.Be proud!You are fundraising for Cupid’sCharity, and the Children’s Tumor Foundation, to find a cure to Neurofibromatosis. This is an extremely worthwhile cause and you should be PROUD that you have decided to be a #RileysRiverRats and fundraise your pants off!
NEUROFIBROMATOSIS FACTS & STATISTICS
Lastly, it’s no secret that we’re dropping pants for a cause, but how much do you and your team know about neurofibromatosis (NF)? A lot of our participants know that they’re fundraising to find a cure, but what do we actually know about the disease?
QUITE A BIT, ACTUALLY.
Here are some really great facts and statistics about NF pulled together by our friends at
the Children’s Tumor Foundation.
- ● NF is a genetic disorder that causes tumors to grow on nerves throughout the body.
- ● There are three distinct forms: NF1, NF2, and schwannomatosis.
- ● NF1 is the most common, affecting 1 in 3,000 people.
- ● NF2 is more rare, occurring in 1 in 25,000 people.
- ● Schwannomatosis is the most rare, affecting 1 in 40,000 people.
- ● NF affects more than 2 million people worldwide, making it more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.
- ● NF affects all populations regardless of ethnicity or gender.
- ● NF may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer.
- ● Half of the people who develop NF1 or NF2 inherit it from a parent. The other half develops it as the result of a spontaneous change in a specific gene in an egg or sperm cell. Every person affected by NF1 or NF2 has a 50 percent chance of passing the condition on to their offspring.
- ● NF is not the “Elephant Man’s Disease,” although it was at one time believed to be. Scientists now believe that John Merrick, the so-called “Elephant Man,” had Proteus Syndrome, an entirely different disorder.
- ● NF research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community, in addition to those living with NF.
- -NF Facts & Stats found at CTF.org